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2020年7月28日-芬苯群組討論貼(部分)

作者:由 粑粑西 發表于 詩詞時間:2020-07-29

之前我沒有選擇把當天發出的疑問貼翻譯出來,原因有二,一是新人比較多上來問怎麼用的也有,當然其實大部分重複的問題都是被管理員取消發表了的,二是有些問題在我看到的當下沒有答案,在我看來比較沒有營養,畢竟我們更需要知道問題以及答案。今日我選擇在空餘時間將問題放出來是因為我看到一些答案對於我們需要的人還是有一些幫助的,希望大家能做個參考。

I can only get hold of the following products. Can someone please let me know, which one is the best product to use for better absorption, etc reasons. Panacur Pet Paste 4.8g OR Panacur BS Liq 1L OR Panacur 4% powder 1kg?

-----Nadia M.(發帖者)

我只能買到下列的一些產品。有沒有人能告訴我,哪一個的吸收更好,或者其他原因(使得它比起其餘的更勝一籌)。Panacur寵物膏 4。8克的或者Panacur BS水1L的或者Panacur 4%的粉末1Kg的?

回帖(David A.):I order my wife both of these and they work very well for her.

我給我妻子買了以下兩種,對她都很管用。

2020年7月28日-芬苯群組討論貼(部分)

2020年7月28日-芬苯群組討論貼(部分)

My husband Mark has grade 4 Glioblastoma he has had ten days of full brain radiotherapy- the doctors have given up and said no more treatment- I’m NOT prepared to let my lovely kind husband go so easily. We will try anything ...so found information regarding Joe Tippens fenbendazole treatment as such would welcome any views or experiences of using this method/meds?

-----Kay W.(發帖者)

我的丈夫馬克患有4級惡性膠質瘤,他已經接受了十天的全腦放療——醫生已經放棄了,並說不再進行治療——我不準備讓我可愛善良的丈夫這麼輕易地離開。我們什麼都可以試試……所以找到了有關喬芬苯達唑治療方法的資訊,我們希望獲得任何使用這種方法/藥物的觀點或經驗。

回帖A(Catherine S.):Start as quickly as possible. It isn't a guarantee, but you have to try. It's had a positive effect on my cancer.

儘快開始使用。雖然這不是(100%)保證,但你必須嘗試一下。它對我的癌症有積極的影響效果。

回帖B(Penny G.):Get THC into him asap along with the protocol x.

買THC讓他一起服用,越快越好。

(注意:THC是喬說的CBD油裡不含有的成分,一般來說它有致幻的副作用,在中國THC也不合法。但是在國外很多人使用的CBD油裡含有THC。)

回帖C(Jessica M.):My dear husband is surviving 18 months of GBM with two tumor in right side of his brain (perial, and frontal lobe). First one was operated and second one did not. He started with 6 weeks of daily radiation and temedor, then 12 months (5/23) of temodor, and optune. From beginning we put him on more that 60 pills of different kind of supplements daily to give him strength, prevent low platelet, and most importantly stop the tumor growth. Luckily no growth for past 18 months. On January we got familiar with FZ through Mr. Tapper blog. At that time we started with 222 mg 3 days on and 4 off. But nothing changed for 3 months. So we changed the plan: 3 weeks of 444 mg daily, then moved to 5 days on and 2 days off. Last two MRIs on May and July shows gradual decrease in size of peripherally enhancing lesion in both tumor locations.

In July visit, his oncologist says: he has not seen this so often and so exited about it. Of course he does not have any idea about all things we have down during past 18 months.

我親愛的丈夫有多形性膠質母細胞瘤-位於右腦(腦周和額葉)的兩個腫瘤,現在已經活了18個月了。第一個進行了手術,第二個沒有。他開始了6周的每日放療和temedor(原文英文錯誤,應該是替莫唑胺(Temodar)),然後接受了12個月(5/23)的temodor(原文英文錯誤,應該是替莫唑胺(Temodar))和optune(電場療法)。從一開始,我們每天讓他服用60多片不同種類的補充劑,以增強他的體力,防止血小板減少,最重要的是想阻止腫瘤的生長。幸運的是,過去18個月腫瘤沒有增長。今年1月,我們透過Tapper(原文英文錯誤,應該是Joe Tippons)先生的部落格熟悉了芬苯達唑療法。那時候我們開始的用量是222毫克/天,吃3停4,但是3個月時間沒有任何變化。所以我們改變了計劃:連續3周每天444 mg,然後改為吃5停息2。5月和7月的最後兩次MRI(核磁共振)顯示結果為,兩個腫瘤部位的病灶在逐漸變小。

在7月的訪問中,他的腫瘤醫生說:他從未看到過這種情況發生(或者叫雖然見過但是也不多),因此對此非常興奮。當然,他對我們過去18個月所發生的一切一無所知。

Help please! This is my first post. My husband has metastatic esophageal cancer and has been on Joe's protocol for 4 weeks now. His lymphoedema is getting really bad, swelling in his face is out of control. Just wondering if ANYBODY would have any suggestions, similar experiences, any tips. Is it possible that his system can't keep up with the cancer die off? All observable lesions are definitely changing, shrinking. We are wondering if we should still continue with the 3 days on and 4 off or if a longer break is needed??????

So very appreciative of any comments.

I would also like to take this opportunity to thank everyone on here, as I have found this group to be such a wealth of knowledge and support. Where to source Fenben, tips for peg feeding and so much more. I am just so grateful! Thanks and best wishes to all here!

-----Laura A.G.(發帖者)

請求幫助!這是我的第一個帖子。我丈夫患有食道癌,已經使用喬的治療方法4周了。他的淋巴水腫越來越嚴重,臉部腫脹已經無法控制了。我想知道有沒有人能給我一些建議,類似的經歷,或者任何建議。有沒有可能是癌細胞死亡速度太快,他的系統(自身恢復能力)跟不上了呢?所有可見的病變確實都在改變、縮小。我們在想我們是否應該繼續吃3停4,還是需要更長的休息時間呢??

非常感謝你們的評論。

我也想借此機會感謝在座的各位,因為我發現這個群組給予了我如此豐富的知識和支援。哪裡能買到FZ,吃法的提示等等。我真是太感激了!謝謝大家,並祝大家都好!

回帖A(Sharon L.B.):Joe now recommends taking it every day. Need to read his up dated blog.

喬現在推薦每天都服用FZ。需要再讀一遍已經更新的部落格。

回帖B(Brenda S.):I would try a different version...like maybe switch to safe-guard if you are using panacur. Has the swelling been since day one? Does it get better on the off days?

我會換其他的品牌。。。比如如果你在用panacur(喬原版牌子)可能試試換成safe-guard品牌的。腫脹是第一天開始(服用芬苯)就有的嗎?在沒有服用的時間裡是不是會好一些?

發帖者回復B: no, swelling only got really bad last week. No improvement on days off. Thank you for your comment.

不是的,腫脹只是從上週開始變得特別糟糕。在FZ的停用期也沒有變好。謝謝你的回覆。

回貼C(Shannon B.):maybe try some Boswellia

也許可以試一試乳香。

【乳香:用於胸痺心痛,胃脘疼痛,痛經經閉,產後瘀阻,症瘕腹痛,風溼痺痛,筋脈拘攣,跌打損傷,癰腫瘡瘍。——自百度百科】

回帖D(Pierre V.):I would get him a wedge pillow to keep him slightly elevated, do panacur every night and add theracumin for swelling and IP6 to help his immune system to keep up. Milk thistle is always good too. Maybe a bit of olive oil with the panacur to help with absorption.

我會給他一個楔形的枕頭,讓他稍微抬高一點,每天晚上吃芬苯,加上薑黃素用於消腫,以及IP6(六磷酸肌醇,是一種由肌醇和6個磷酸離子構成的天然化合物。它存在於天然的全穀食物中,比如米,燕麥,玉米,小麥以及青豆等-自網路)幫助他的免疫系統保持(正常水平)。牛奶薊(或名水飛薊,護肝)也很好。可以加一點橄欖油幫助FZ吸收。

回帖E(Marie R.):Swollen lymph nodes mean that they are doing the job.....bodies sewer system. Seems they cannot clean out fast enough and need some TLC. You can look at adding herbs to help and or get lymphatic massages, rebounding etc.

淋巴結腫脹意味著它們正在工作。。。這是身體的排汙系統。看起來它們不能足夠快的排出毒素,需要一些TLC的幫忙。(TLC主要是減少攝入飽和脂肪和膽固醇,也鼓勵開始做一些輕,中度的體力活-自網路)你可以考慮新增一些草藥來幫助排汙或者進行淋巴結按摩,反彈按摩(應該是我們平時說的老頭樂這種東西吧)等等。

回帖F(Mary J.F-P): Is he on anything else too. Chemo radiation. Just wondering.

就是問問,他還在做其他什麼治療嗎?化療或者放療?

發帖者回復F:nope, palliative care is the only doc we see... chemoradiation, surgeries, immunotherapy trial all behind him already...

沒有,我們現在只有見姑息治療的醫生,化療放療,手術,免疫治療,臨床試驗都已經做過了。

回帖G(Beverley B.):Palliative?? Oh, no. You should double up on the Fenben. Every day, twice a day.

姑息治療?不行。你現在應該把他的芬苯劑量翻倍,每天兩次。

回帖H(Kimberly A.):Google Scholar for research. Paul Stamets TedTalks. Host Defense Turkey tail mushroom. Short, short story. Coworker's mom had stage 4 lung cancer tumors every where and large one on esophagus. She was given advice to get her affairs in order. Got on Turkey tail, that was summer 2018. All tumors are gone and she's good. Doctor speechless. At some point she was on keytruda. She took 8 capsules a day. Maybe something to consider?

去Google Scholar(谷歌學術)研究一下。Paul Stamets(人名)的TedTalks(節目名)。Host Defense Turkey tail mushroom(產品名及品牌,Turkey tail的中文名是雲芝)。一個小故事。同事的媽媽是四期肺癌,腫瘤到處都是,食道上有個大的。有人勸她把後事安排好的。2018年夏天她開始服用雲芝,所有的腫瘤都沒了,她人現在好好的。醫生們都啞口無言了。大概在曾經的某個時候她是用過Keytruda的。她每天吃8顆(膠囊)。也許可以考慮一下?

回帖I(Joan D.S.):Would go to FENBEN everyday. Some are adding it to DMSO for absorption. If you add turkey tail, make sure you take with food. Also agree with Massotherapy, BUT has to be someone who specializes in lymphatic drainage. Drink at least 64 ounces of water following any Massotherapy. Finally, you may want to consider calling the Care oncology Clinic for an appointment and start their regimen of 4 off label drugs (per Jane McLellands book on how to starve cancer.)

應該每天吃芬苯的。有些人會混合DMSO來服用以確保它的吸收。如果你加入了雲芝,確保跟食物一起服用。也認同按摩療法,但是,必須是淋巴引流專家(而不是隨便一個按摩師)。在按摩之後起碼要喝64盎司(1。89L)的水。最後,你可以考慮打電話給腫瘤護理診所預約(按照Jane McLellands在《如何餓死癌症》一書中所說的那樣),開始他們的4種非標籤藥物治療方案。

Concerned about keeping my son on vit e. Should I keep him on vit e.

-----James B.(發帖者)

擔心讓我兒子服用維生素E,我應該讓他服用維生素E嗎?

回帖A(Jessica A.):I think I read Joe dropped the E. I took it for 2 weeks and had to stop. Made me sick and itchy.

我記得喬沒有用VE了。我吃了2周的VE然後棄用了。它讓我難受並且癢癢。

發帖者回復A: thank you it’s not bothering him. I just don’t want to give him something that might hurt him

謝謝你,那倒沒有這種事困擾他(發帖者的兒子)。我只是不想給他吃可能會傷害到他的東西。

回帖B(Tim M.): I stopped taking vit E after it was contraindicated for prostate cancer, by Jane McLelland's page

在維生素E被診斷為前列腺癌禁忌症後(Jane的主頁裡有講)(Jane寫了一本叫做《如何餓死癌症》的書,在癌症患者中被廣泛閱讀,據我所知知乎的張習如正在翻譯,建議去她的頁面看看),我就停止服用了。

其他回覆者回復B:I also have PC, I did include the Vit E Succinate after I think it was Smedley Luck who recommended it for PC.

我也患有前列腺癌,但是我依然在服用琥珀酸維生素E,我記得是Smedley Luck推薦給前列腺患者的。

回帖C():E shouldn't be an issue with the exception of some hormone-related cancers. Black Cumin Seed Oil can be used in its stead and has lots of science studies especially against breast cancer cells. Jane's "drugs" are pharmaceuticals, many of which can cause growth of cancer, even over the counters. Dr Gerson as well as many other holistic docs, and I agree, that you can't heal a disease promoted by toxicity and inflammation by adding more toxins. Starving cancer is about as easy as bobbing for 20lb apples.

除了一些激素相關的癌症外,維生素E應該不是問題。黑孜然籽油可用於代替VE,有很多科學研究,尤其是針對乳腺癌細胞。簡(Jane)的“藥物”是藥品,其中許多可能導致癌症的增長,甚至是非處方藥。格爾森醫生的觀點和許多其他的全科醫生一樣,我也表示同意,你不能透過增加毒素來治癒由毒性和炎症引起的疾病。餓死癌症就像在水中上下襬動20磅(約10公斤)的蘋果一樣簡單。(最後一句真的不好理解,如果我理解的對就是這麼個意思,理解的不對,你們就當沒看到最後一句,反正這種比喻句也不是特別重要。。。)

My mom has small cell carcinoma and her pain is bad. Any tips / advice?

She’s on the Joe Tippens protocol / and I’m learning about blocking cancer pathways.

What can we do for the pain? Her doctors want to put her on morphine.

-----Jen K.(發帖者)

我媽媽得得是小細胞惡性上皮腫瘤(在醫學上專指由上皮組織來源的惡性腫瘤,其它由結締組織來源的惡性腫瘤只稱作惡性腫瘤,如:肌肉或骨骼的惡性肉瘤(Sarcoma)、黑色素細胞的惡性黑色素瘤(melanoma)、生殖細胞的畸胎瘤(Teratoma)-自百度),她很痛,有任何技巧/建議嗎?她正在用喬得方案,而我正在學習如何阻斷癌症途徑。對於這種疼痛我們能做些什麼呢?她的醫生想給她注射嗎啡。

回帖A(Renee M.R.): Have u looked into getting a medical marijuana card. We just went to the holistic dr today and we are getting one for my husband. He has lost about 45 pounds, has no appetite, and pain. The dr recommended a gummy. I guess the THC can help with all of those? We are new to this but at this point I think we are open to anything. Plus I think it is better than taking pain meds. Anyway, just a thought.

你有沒有考慮過申請醫用大麻卡?我們今天剛去看了醫生,打算給我丈夫辦一個。他體重減輕了大約45磅,沒有食慾,還感到疼痛。醫生推薦了一種橡皮糖。我想THC可以幫你解決所有這些問題?我也是新來的,但在這個點上,我認為我們對任何事情都持開放的態度。而且我覺得這比吃止痛藥好些吧。不管怎樣,只是我的一個想法而已。

回帖B(Frank A.L.Jr): The THC fights pain.

THC可以止痛。

注:不是所有的帖子都翻譯了。以上的翻譯都是出於我個人想給大家更多的鼓勵,加油各位。不回答我在哪買的藥,畢竟回答了就成賣藥的了。TB自己搜搜看。

我只負責翻譯,不負責內容真實性。大家都是成年人,我不是醫生,也沒有給你開藥,請對自己及所愛的人負責。討論任何一種可能之前,先研究、再調查,檢視國內外的藥品詳情、對症情況、治療效果、研究報告等。

道聽途說在爭分奪秒的時間前顯得尤為傻X不堪。

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